What is my life expectancy with celiac disease? | Celiac Disease (2024)

What is my life expectancy with celiac disease? | Celiac Disease (2)

If celiac disease is properly managed, most people diagnosed with celiac disease can have a normal life expectancy. However, if celiac disease is not treated with a diet that is completely free of gluten, then the damage that is caused to the small intestine will continue and it could potentially be life threatening. When celiac disease goes untreated in adults or children, they become malnourished. Liver diseases and cancers of the digestive tract can also occur as a result of long-term unmanaged celiac disease. The most important thing if you suspect you or someone you care for has celiac disease is to get diagnosed so treatment can begin.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.

Celiac Disease

Celiac disease is an inherited, auto-immune disease affecting the lining of your small intestine. If you have celiac disease, it means that your body cannot process gluten, which is found in any food containing wheat, barley or rye. While symptoms vary from person to person, many patients will complain of gastrointestinal problems. Anemia is also a very common presenting symptom of celiac disease. A life-long gluten free diet is the standard of care for treating celiac disease.

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What is my life expectancy with celiac disease? | Celiac Disease (2024)

FAQs

What is the average life expectancy of someone with celiac disease? ›

A total of 828 patients (8.3%) died, with few deaths before the age of 40 years, more than half after the age of 60 years, and an average age at death of 68.6 years. Overall, mortality risk was 2-fold increased in patients with celiac disease compared with that in the general Swedish population (Table 1).

Can celiac disease get worse with age? ›

The risk of autoimmune disorders and cancers particularly increase in older celiac patients and is shown to be associated with both the age and the duration of gluten exposure.

What is the long term outlook for celiac disease? ›

Studies show your chance of developing another autoimmune condition goes up the longer celiac disease goes untreated. Celiac disease itself may also become increasingly slow to respond to treatment.

What is stage 4 celiac disease? ›

Of course, stage four is the most advanced stage and is not seen too often. In this stage, Orlando Gastroenterology Consultants of Central Florida see the villi are completely flattened, or atrophied. The crypts, or depressions, between them are shrunken too.

How hard is life with celiac disease? ›

Having coeliac disease can be challenging but it's a manageable condition. Stay positive and focus on the huge impact your managed diet can make to your health and the way you feel. The person that's in control of it is you and the better you explain the condition to others, the more support you'll get.

Does celiac get progressively worse? ›

Over time, a range of problems may develop as a result of the body's reaction to gluten — from skin rashes and lactose intolerance to infertility, bone weakness and nerve damage. These can often happen even in the absence of digestive symptoms.

How serious is celiac disease? ›

People with celiac disease who don't maintain a gluten-free diet have a greater risk of developing several forms of cancer, including intestinal lymphoma and small bowel cancer. Nervous system conditions.

Is celiac disease a disability? ›

Because of these special needs, celiac disease is considered a disability under the Americans with Disabilities Act. This designation is particularly relevant in certain public establishments, like educational institutions, from pre-school to college.

Does celiac disease affect quality of life? ›

People with Coeliac disease who suffer persistent symptoms despite adherence to a gluten-free diet are at a greater risk of a reduced health related quality of life.

What is the mortality rate of celiac disease? ›

Findings. In this population-based cohort study of 49 829 patients in Sweden with celiac disease followed up for a median of 12.5 years, the mortality rate compared with general population controls was 9.7 vs 8.6 deaths per 1000 person-years, a difference that was statistically significant.

What is the 2024 celiac treatment? ›

Entero Therapeutics, Latiglutenase

Entero plans to initiate a phase 3 trial in the second half of 2024 to assess the drink-based study medication latiglutenase and its ability to relieve common symptoms suffered by celiac disease patients after accidental gluten exposure. Read more about Entero.

Why is celiac so common now? ›

Experts still don't really know why Celiac disease has become more prevalent, but it could be due to changes in the way wheat is processed, or the widespread use of gluten in medications and packaged foods.

Does celiac change life expectancy? ›

Celiac disease is not a fatal condition. But if it's not managed, it can affect your health In ways that put you at risk of earlier death.

What are the 5 stages of celiac disease? ›

Celiac disease is clinically defined as classic, non-classic, subclinical, potential, and refractory.

How painful is celiac disease? ›

Celiac disease can be painful. Some common pain symptoms are: Stomach pain or swelling (bloating) that keeps coming back. Muscle cramps or bone pain.

Is celiac disease a permanent disability? ›

It is usually treated with a gluten-free diet. Because the symptoms of celiac disease disappear when there is no exposure to gluten, most people with celiac disease do not qualify for SSDI or SSI benefits.

Is celiac disease very serious? ›

Untreated celiac disease can lead to the development of other autoimmune disorders like type 1 diabetes and multiple sclerosis (MS), and many other conditions, including dermatitis herpetiformis (an itchy skin rash), anemia, osteoporosis, infertility and miscarriage, neurological conditions like epilepsy and migraines, ...

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